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Jessica Fabre Navigating Rare
Jessica Fabre, the founder of Navigating Rare, has first-hand experience navigating the difficulties of having a child with a rare disease. Her personal story empowers and educates caregivers and healthcare providers alike.
Living with a Rare Genetic Disease: Meet Sophie, AJ and Jessica
Limb Girdle Muscular Dystrophy 2A/R1 is a progressive muscle wasting disease with no treatment or cure. Warrior Sophie describes what it's like to be 11 years old living with a rare disease.
Book Launch Seminar for Dear Mama, Stories of an Extra Lucky Life
Jessica speaks about her daughter Sophie's diagnostic odyssey
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