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Connecting Caregivers with Information and Support

 Coalition to Cure Calpain 3 Click link to visit site

Coalition to Cure Calpain 3 (C3) has a pinpoint focus: to drive a cure for limb-girdle muscular dystrophy type 2A (LGMD2A/R1), also called Calpainopathy. For the last decade, C3 has been the U.S.-based non-profit leader of funding for LGMD2A/R1 research and is led by Scientific Director Dr. Jennifer Levy who directs the grant program, with a portfolio focused on gene and cell therapy, novel approaches, tool creation, and clinical trial readiness.

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LGMD2a/Calpainopathy Patient Registry 

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How can you help drive research and speed development of a treatment?

If you or your child is living with Calpainopathy, join the registry today at LGMD2A.IAMRARE.org

Please also visit Facebook to join support groups:
Living with Limb-Girdle Muscular Dystrophy
Limb Girdle Muscular Dystrophy Group
Limb Girdle Muscular Dystrophy (Beyond Labels and Limitations, Inc.)
LGMD Awareness Foundation
LGMD2i Foundation

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